Category Archives: Family & Friends

Mascot Update

Bunny saw a developmental pediatrician recently.  He diagnosed her on the autism spectrum.  This is actually good news.  Her parents and teachers have suspected it for a long time.  With the diagnosis, she now qualifies for the same excellent therapy sessions that have helped Buzz so much.

Meanwhile, Bootz is crawling, climbing, and making his needs known with vigor.  One of these is to see his favorite DVD as often as possible.

2017_04 13 Alex Sing the Bible

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I had the most AWESOME check-up!

Happy Dance

My thyroid levels (T3, T4, TSH) are all in the normal range again!

My red blood count is in the normal range again and my hemoglobin is just a smitch under normal!  My ferritin has dropped into the basement, so I am going to switch to a better brand of iron.  Ferritin is the body’s iron pantry.  I used mine up replacing the blood I lost last summer when I sprung a leak in my innards.  I hope the low ferritin is why my legs have been so very achy.  That’s on the list of symptoms for low ferritin.  If it is, the iron will fix it and my legs will feel better. This will be good for my Happy Dancing!

BEST NEWS OF ALL, my kidney function has IMPROVED!  If my doctor weren’t so laid back, I think he would’ve high fived me!  My creatinine has been stuck around 2.21-2.23 since last summer.  The latest test was 2.0.  !!! 

So NO more nephrologist and no more lab tests or office visits until JULY!!  WOOHOO!!!!!!!!!!!!!!

I am definitely going to keep on with my Cordyceps!!  It’s not only fixing my kidneys, but also boosting my energy level.  The other day, I took TWO walks.  In the same day!!

I really, REALLY wanted a walk today, but it has been COLD and raining buckets.  Plus, I realized that, after 10 years of never leaving the house, I do not own an umbrella!  So I treated myself to a new one to celebrate my creatinine!!

After consulting with the Queen of Shopping (aka, Mama Buzz), I chose a GustBuster, the brand preferred by the PGA.  My dad will enjoy that.  🙂  It’s vented for wind so it won’t turn inside out.  And it is nice and wide at 48″, with a traditional J-shaped, bamboo handle, a fiberglass shaft, and a warranty. Really top shelf.  Also, it’s PINK, so maybe Dearest will keep his mitts off it LOL.  Granted, it was pricey … but CREATININE!

My apologies for all the !!!!!!!!!!!!!!  It’s hard for me to be CALM RIGHT NOW!!!!!!

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Welcome to my life

This Kickstarter project has met its goal, so this is NOT about asking you for money.  I just want to give those of you who are curious about my illness a little peek into what it’s about.

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Canary Housing Cooperative

Dearest and I are deeply involved with this non-profit, which was founded by a very old and dear friend who has the same physical problems I do because of Environmental Illness/Multiple Chemical Sensitivities.

Housing for folks like us is very, very limited.  A lot of us become ill because of toxic housing and end up not only sick, but also homeless.  Hence, the project.

As a volunteer architect, Dearest helped find the right house, then designed renovations to turn it into three chemical and electrical sensitivity-safe units.

As a volunteer contractor, he now donates one day a week to physical work on the site.  At the moment, they’re mostly doing cleaning (the oil tank HAD to go!) and demolition.

As a volunteer computer nerd, I have obtained the sales tax exemption number (what a pile of paperwork THAT was!) and designed and printed our stationery, which is über cute, even if I say so. 🙂

My chief task at the moment is to monitor local freecycle and online garage sale sites for building materials we’re going to need.

At the moment, we have zero bucks.  With $5,000, we could do the improvements the bank requires to get a construction mortgage to finance the rest of the renovations.  After the work is done, the units will be sold or rented, providing money to repay the mortgage.

We have a web site now!  It explains things and has pics of the house.

http://canaryhousingcooperative.org/

If any of you are looking to maybe transfer your tithe to a new organization, this is a good one!  NOBODY takes a salary.  Every single penny will be squeezed until it screams to move us toward our goal of providing housing for three EI-ers.

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How Fragile Life Is

They say death is the final stage of living. Sometimes a terrible illness like cancer will drain the life from someone a little every day until there is nothing left. I watched my stepdad go from a healthy 180# to about 60# when the Lord finally released him from his pain. I have an 8-year-old grandson who has waged a battle with this killer for 2 years and is holding his own. Other times it comes in the blink of an eye. In the duration of a moment it can end.

In the last week not one but two personalities from Fox News have passed away. First was Bulls and Bears host Brenda Buttner.

Fox News Host Brenda Buttner Dies at 55

Before joining Fox in 2000, Buttner hosted CNBC’s “The Money Club” and served as a Washington correspondent for the cabler in the early ’90s.  A graduate of Harvard, Buttner began her TV career at NBC affiliate KCRL in Reno, NV. She is survived by her two daughters.

Today came word that Alan Colmes, who was the foil to Sean Hannity for years, has passed away.

Fox News’ Alan Colmes Dies at 66 After ‘Brief Illness’
“Alan Colmes passed away this morning after a brief illness. He was 66 years old. He leaves his adoring and devoted wife, Jocelyn Elise Crowley. He was a great guy, brilliant, hysterical, and moral. He was fiercely loyal, and the only thing he loved more than his work was his life with Jocelyn. He will be missed. The family has asked for privacy during this very difficult time.”

The segment then aired a tribute package from Fox News Channel host Sean Hannity, Colmes’ former co-host on Hannity & Colmes, a nightly political debate show that ran on the Fox News Channel from 1996 to 2009.

My grandmother, the wizened old matriarch of the family, always said

  • “One day you ain’t gonna wake up. Then it’s too late to worry, so stay right with God.”
  • “All the money in the world won’t buy you another second when the time comes.”
  • “I ain’t never seen a Brinks truck in a funeral procession. You ain’t takin’ nothin’ with you.”

There are many times I’d give all I own just to talk to her again for an hour. She always seemed to know what to say in times of crisis.

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REGULAR BUSINESS BELOW

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I Got the Fever

Cabin fever is a serious but not often fatal disease whose beginning coincides with winter freeze over on lakes and rivers. Long months of cold, dreary nothingness, the only comfort being the promise of a renewal with the coming of Spring. This winter has been something of an oddity. This weekend the highs will be in the 60’s in my part of the country, with ample sunshine. The lakes are still frozen, but the ice is getting dangerously thin.

There is an annual Boat and Fishing Show being held this weekend at the Sports Center in our town. I’m taking my beloved grandson, R.J., for his first show. I’ve looked forward to this for months. I’ve found out that the father of his best friend is dating my cousin! Small world. They’re coming with us and I’m planning a trip to SE Wisconsin in June with a professional guide for the 4 of us. My longtime fishing partner suffered a stroke last year and can’t/won’t travel as far as we used to. So I’m planning a number of guided trips to different waters to show my grandson some new experiences.

I wasn’t exactly Ward Cleaver when my girls were growing up. Truth is I was hardly there at all. Everything was always about me. I had no sons and RJ is my only grandson. (Tyler is also, but his mother doesn’t want much to do with me. She has her hands full with him and his battles with cancer.)

I love my granddaughters but there’s always been a special bond between boys and their grandpas. It’s the only time I get him to myself and I cherish every minute. The way he watches and listens to everything I try to teach him, it’s like I’m special to somebody. It’s the happiest time for me, since my daily routine never changes much. Hopefully, someday when he has sons and grandsons of his own, he can tell them about the times he went fishin’ with his grandpa. Maybe even tell a few fish stories. There’s not a better feeling in the world than being a shining light for someone else.

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Dangerously thin ice

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SORRY SO MANY….I’VE BEEN SAVING UP

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Have a beautiful day!

One blessing of the digital age is that a distant daughter can share a gorgeous sunrise and wish her loved ones a beautiful day. 🙂

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Mascot Update: Cleaning

Bunny helped clear away the mountains of snow that fell on their home.

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And Buzz helped clean up the abominable and expensive mess he made in the kitchen when certain parties of the husbandly persuasion did not put the Shakeology powder back in the cupboard.  Buzz likes to throw stuff.  I dunno if it’s a Buzz thing or an autism thing.

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Mama Buzz can always be counted on to find the silver lining … eventually.

“While I was initially pissed, I am now just annoyed.  I decided to find positives while I was cleaning instead of stewing.  For example, my kitchen is getting a thorough cleaning.  Have you ever vacuumed a stove or oven?  I have!  Also, it was only half a bag Shakeology and not a whole bag.  And, I didn’t beat the crap out of my son.”

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