FROM D#2S FB PAGE:
Tyler Update: I shared a link to his CaringBridge account, which I will post updates on as much as possible. Here is the recap of our appointment yesterday. We have been in touch with Ronald McDonald house about lodging, but are looking for some solutions for parking. There are no accomodations for longer than 24 hours for families with kids at Lurie, and all of the parking we have found runs $50+ a day, per car. If anyone has any connections with parking in downtown Chicago, please message me.
Tyler’s treatment will include 30 weeks of chemotherapy, with 5 different medicines, alternating between 2 cycles every 2 weeks. The first cycle is 2 days, the second cycle is 5-6 days. We will be back at Lurie first thing on Monday morning to get his port installed, and have the bone marrow biopsy. He will begin his first round of chemo on Tuesday, which will last for 2 days. If he is doing well enough, we will be able to come home on Wednesday. Then we will head back in 2 weeks to start on the second cycle. That means that in a month’s time, we will be at the hospital for chemo at least 9 days. The other part of Tyler’s treatment is the local treatment, meaning what they will do to the actual tumor (chemo treats the whole body). It will likely be either radiation or surgery, and either way it will be in the 13th week of treatment. We won’t know more about which until we see how the tumor responds to the chemo. We were told that it should start reducing in size, as soon as after the first few treatments.
We won’t know the staging or prognosis until next week. Based on his age, the size of the tumor (which is big for the area that it is in, but for this type of tumor, isn’t super big), the oncologists were optimistic and said they can cure this. There could be long term effects of the treatment, as well as the short term. We are going to sit down with Tyler this morning to try to explain his diagnosis, and what it will mean for him.
We have been so overwhelmed by the outpouring of love & support. We are in for a long road, but I know that Tyler is going to beat this. Thank you so much for everything, and please continue to pray for our boy. Team TFT!
THE MOTHER OF ONE OF TYLER’S LITTLE FRIENDS SET UP A GOFUNDME PAGE TO HELP THEM WITH EXPENSES.
NOTE: I AM IN NO WAY ASKING ANYONE FOR CONTRIBUTIONS.IF YOU HAVE A COUPLE BUCKS TO SEND,GOD BLESS YOU. ALL I’M ASKING IS TO KEEP MY GRANDSON AND HIS MOM IN YOUR PRAYERS. IT’S GOING TO BE A LONG,TOUGH ROAD,BUT HE’S GOING TO KICK CANCER’S ASS.
Hey CHICAGO friends! My friend’s 6 yr old son Tyler was diagnosed with a fast growing cancer and starts a 30 week chemo treatment. Does ANYONE have a parking connection solution for this family that will spend the next 30 weeks on and off at the Lurie Childrens Hospital on East Chicago Ave?
They’re making arrangements with the Ronald McDonald house but the parking is $50 a day!!
Here’s the gofundme page set up for Tyler, it tells more about his condition. Most you ZUMBA followers probably know his beautiful mother, Alisha Levine. She’s been an instructor for FitPro and is a great person with a huge heart, anyone who’s ever met her will know her by her smile.
We were able to get a room at the Ronald McDonald House, & arrived safely just before 8pm. This place is amazing, & we are so grateful to be here. Tyler kept saying we were going to Ronald McDonald’s house lol. We have to be at Lurie at 730am tomorrow morning for his ECG, & his surgery to install the port & take the bone marrow biopsy is at 10am.
For my grandson,Tyler
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For far too great a part of my life I was only interested in ME.What made me feel better? What was in it for ME? At this point I put others before me. If only there were a way to trade places I would do it in a heartbeat. It just doesn’t seem fair. I never laid eyes on him until last October and was just getting to bond with my daughter after far too many years. Now this. I can’t begin to understand this,I just have to put my faith in Almighty God. It’s all I have.